Monday, July 18, 2022

my psoriasis

 The kids are back at school today and it feels great! I always welcome school holidays by the time they roll around, but by the end of it I'm itching to get the routine and structure back that comes with the kids going to school each morning.

I have a dentist appointment in about 30mins and I can feel my body starting to get anxious so I'm trying to distract myself.

My skin has been occupying a lot of my space lately and I'm so ready for that to change. I have been really resisting the thoughts and feelings I was having about my skin, practically denying that they were there, but I finally reconciled myself with them, allowing myself to feel the feelings and I feel much better for it.

I hate my skin, it is ugly and gross and painful. I was avoiding these thoughts because I don't think it's good to dwell in self-pity. But I've realised allowing the feeling is not dwelling, so I've been giving myself permission to feel this way for the last week or two, and now feel ready to try embrace some new more constructive thoughts that will serve me better. and as far as treating my skin, I'm trying a variety of creams, ointments and cleansers to help curb the symptoms and I have made the appointment to return to my dermatologist - the earliest available is 3 months from now so I have a bit of a wait.

It has been getting worse very quickly and I have been really struggling with it. It gets so itchy, and so sore and I find it so hard not to scratch and pick it. Kerry can hardly touch my body anymore, and when he does I wince through the pain. I feel so much better since really acknowledging those thoughts and feelings and now I feel like I've given it the space it needed and it's time to move forward.

Saturday, July 2, 2022

End of Term 2 2022

 It is now officially school holidays even though Mathias holidays started a week ago, the official term ended yesterday. This week has been good. The big benefit for me, having one of my big kids home is having someone to help look after Oakley. He has been teething, he has cut his first two bottom teeth last weekend, but he's still a bit miserable for no apparent reason sometimes, we can only guess that it's teething. So I've been pretty tired, I'm always tired, but it makes me a bit extra tired because he usually sleeps with me, and I usually don't sleep as well when I have a kids with me. Add teething to that,  equals crap sleep. I typically work 5 nights a week now too, so Kerry and I barely see each other because he get home, and I go to work. So when I do get home just after 11pm that's the only time I get to see him so we'll usually watch an episode or two of a tv show. I'm not complaining, not at all. Part of me wishes I didn't have to work, but another part of me enjoys the 'alone time' I get when I do go to work. Everything in life generally comes with good parts and bad parts and I choose to be here for it all. I love the life I've created, my family is my everything, and the little things I enjoy for myself on the side of that. 

I did have a scare last Sunday night. We had eaten dinner, I made a yummy roast pork! then I ran a bath for Micah. Once he was in the bath, I made sure he cleaned his body and then my stomach started to get sore like I needed to go to the toilet. So while he was bathing I went to the toilet. The stomach pain comes in waves, and it turned into the diarrhoea as I stayed on the toilet. I gradually started to feel drained, it feels like I'm being drained of every ounce of energy and blood. I told Micah to call for Kerry and he took one look at me and knew what was happening. I loose all colour and turn stark white. I feel hot and sweat, a lot, it seems to pour out of me and I am incredibly helpless I can't even hold myself up and really have to muster up what little strength I'm left with to talk to Kerry, if I can. I'm scared, and helpless, and I can hear in Kerry's voice he's scared. There were a couple things that felt slightly different about this episode. It came on gradually, in the past it happens a lot quicker. It also seemed to last longer, all up it was about 30-40 minutes, and when it did pass/finish, I recovered strength a bit quicker. Granted it still takes a bit out of me and I spent the whole next day in bed, after it had passed I was able to sit up and talk relatively normal again. In the past I've had to get straight into bed because I don't have the strength to do anything else yet.

It scares me. what scares me most is that it could happen when Kerry's not here or able to get to me quickly. But there's quite literally nothing we can do. It doesn't happen often or consistently enough to do anything, and from what I've read there's still not really anything Drs do about it either. 

Anyway, today's been good, Micah and Carter had their soccer games both at 10am this morning. Kerry too Oakley this afternoon so I had an amazing nap by myself. best. sleeps. ever. I do have work tonight but it's 3.5hrs so it's not too bad and I have tomorrow night off. 

Mathias is going away for a week tomorrow with his friends family. They have a holiday unit on the south coast which they invited him to go with them. The second week of holidays he has his dance workshops everyday.

I'm taking Carter and Micah to the movies on Wednesday and I've booked in for us to go ice skating at the Bathurst winter festive next Saturday which should be fun.